Archives


Communication and Decision Making for Patients With End Stage Diseases in an Acute Care Setting

Carol F Grbich
School of Medicine, Flinders University, Adelaide SA

Karen Parish
Director of Nursing and Patient Services, Repatriation General Hospital, Adelaide SA

Karen Glaetzer
Nursing Coordinator, Outreach Palliative Care, Southern Adelaide Palliative Services, Repatriation General Hospital, Adelaide SA

Meg Hegarty
Department of Palliative Care, Flinders University, Adelaide SA

Lynne Hammond
Palliative Care Clinical Nurse, Southern Adelaide Palliative Services, Repatriation General Hospital, Adelaide SA

Annie McHugh
Palliative Care Clinical Nurse, Southern Adelaide Palliative Services, Repatriation General Hospital, Adelaide SA

Abstract

Twenty retrospective patient case studies were collated in an acute care teaching hospital using a case note audit and in addition interviews were undertaken with 40 nursing staff following the deaths of these patients in order to: analyse the end of life care received; identify any deficits in care provision and to enable the nursing division to target any inadequacies in care found.

Findings indicated that communication between medical and nursing staff and between nursing staff, patients and family around end of life issues continue to be poor and that discussions regarding NFR decisions occurred too close to death, creating unnecessary stress for both patients and families. Recommendations regarding palliative approaches in the acute care setting are detailed.

Keywords

palliative care, acute care setting, patient communication, patient decision making, nurses decision making


Toggle references

References

Ashby M, Maddocks L, Reynolds C, Roder D, Stoffell B, Beilby J and Wakefield M (1991) Care of Terminally Ill Patients: General Practitioners' Views and Experiences, Report prepared for the South Australian Parliamentary Select Committee on the Law and Practice Relating to Death and Dying: November 1991.

Ashby M and Stoffell B (1991) Therapeutic ratio and defined phases: proposal of ethical framework for palliative care. British Medical Journal June 302(1): 1322-1344.

Beth Israel Medical Center (1999) Palliative Care for Advanced disease (PCAD) Unit Reference Manual. Continuum Health Partners. http://www.stoppain.org/for_professionals/content/PCAD/pcad2.asp [Accessed 30 March 2006]

Brown M (2003) The law and practice associated with advance directives in Canada and Australia: Similarities, differences and debates. Journal of Law and Medicine (11): 1-23.

Carline J, Curtis J, Weinrich M, Shannon S, Ambrozy D and Ramsey P (2003) Physicians interactions with healthcare teams and systems in the care of dying patients: perspectives of dying patients, family members and healthcare professionals. Journal of Pain and Symptom Management 25(1): 19-28.

Commonwealth Department of Health and Aged Care (2000) National Palliative Care Strategy: A National framework for palliative care service. Canberra.

Cringles M (2002) Developing an integrated pathway to manage cancer pain across primary secondary and tertiary care. International Journal of Palliative Nursing 8(5): 247-55.

Curtis R, Weinrich M, Carline J, Shannon S, Ambrozy D and Ramsey P (2001) Understanding physician's skills at providing end of life care: perspectives of patients, families and health care workers. Journal of Internal Medicine 16(1): 41-49.

Emanual E and Emanuel D (1992) Four models of physician-patient relationship. Journal of the American Medical Association 267: 2221-6.

Field D and Addington-Hall J (1999) Extending specialist palliative care to all? Social Science and Medicine 48: 1271-1280.

Fowell A, Finlay I, Johnstone R and Minto L (2002) An integrated care pathway for the last 2 days of life: Wales-wide benchmarking in palliative care. International Journal of Palliative Nursing 8(12): 566-73.

Froggatt K (2000) Palliative care education in nursing homes. Abridged report of an evaluation for Macmillan Cancer Relief, UK.

Grbich C, Maddocks I, Parker D, Piller N, Brown M and Willis E (2003) Palliative care in aged care facilities for residents with a non-cancer diagnosis. Canberra: National Health and Medical Research Council publication.

Grbich C, Maddocks I, Parker D, Piller N, Brown M, Willis E and Hoffmeyer A (2005) Identification of patients with non cancer diseases for palliative care services, Palliative and Supportive Care 3: 5-14. (Online Journal) March http://journals.cambridge.org/action/displayIssue?jid=PAX&volumeId=3&issueId=01 [Accessed 30 March 2006].

Hall P, Schroder C and Weaver L (2002) The last 48 hours of life in long-term care: A focused chart audit. Journal of the American Geriatrics Society 50: 501-506.

Hart B, Sainsbury P and Short S (1998) Whose dying? A sociological critique of the 'good death', Mortality 3(1): 65 -77.

Maddocks I (1993) Good palliative care orders. Palliative Medicine 7: 35-37.

Maddocks I and Parker D (2001) Palliative care in nursing homes, In JA Addington-Hall and IJ Higginson (eds) Palliative Care for Non-Cancer Patients, Oxford University Press, Oxford: 147-157.

Middlewood S, Gardner G and Gardner A (2001) Dying in hospital: medical failure or natural outcome? Journal of Pain and Symptom Management 22(6): 1035-41.

Mills M, Davies H and Macrae W (1994) Care of dying patients in hospital, The British Medical Journal 309: 583 586. *Reprinted in Monash Bioethics Review (1996) 15(1): 11-19.

NHS Executive (1996) A Policy Framework for Commissioning Cancer Services: Palliative Care Services. EL (96)85: NHS Executive.

Palliative Care Australia (1999) Standards for Palliative Care Provision. Canberra: AGPS

Pincombe J, Ballantyne A, Brown M, Thome D and McCutcheon H (1998) The Care of Dying Patients in the Acute Care Setting. University of South Australia.

Shanley C and Wall S (2004) Promoting patient autonomy and communication through advance care planning: a challenge for nurses in Australia. Australian Journal of Advanced Nursing 21(3): 32-8.

Sidell M, Katz J and Komaromy C (1997) Death and dying in residential and nursing homes for older people: examining the case for palliative care. Report for the Department of Health. Milton Keynes: Open University.

Terhikki M, Alaviuhkola R and Pietila A (2001) The contribution of the ‘Good' Palliative care to quality if life in dying patients: Family members' perceptions. Journal of Family Nursing 7(3): 261-280.

Ternestedtm B, Andershed B, Eriksson M and Johnsson I (2002) A good death: development of a nursing model of care. Journal of Hospice and Palliative Nursing 4(3): 153-159.

Wakefield M and Ashby M (1992) Attitudes of Bereaved Relatives to Terminal Care in South Australia, Report prepared for the South Australian Parliamentary Select Committee on the Law and Practice Relating to Death and Dying: March.

Wales S (2003) Integrated care pathways: what are they and how can they be used? Clinical Governance Bulletin 4(2) 2-4 July.



Web Feed

Latest Articles

Call for Papers

Advances in Contemporary Nurse Education
Volume 32/1-2
Deadline: 15th Dec 2008


Advances in Contemporary Nursing and Gender
Volume 33/2
Deadline: 25th Feb 2009


Advances in Contemporary Mental Health Nursing – Second Edition
Volume 34/1
Deadline: 2nd Mar 2009


Advances in Contemporary Modeling of Clinical Nursing Care
Volume 35/1
Deadline: 30th Apr 2009


Special Issues

Advances in Contemporary Modeling of Clinical Nursing Care
Summary


Advances in Contemporary Mental Health Nursing – Second Edition
Summary


Advances in Contemporary Nursing and Gender
Summary


Advances in Contemporary Nurse Education
Summary


Advances in Contemporary Nursing: History of Nursing and Midwifery in Australasia
Summary | Contents


Advances in Contemporary Transcultural Nursing (2nd edn)
Contents


Advances in Contemporary Palliative and Supportive Care
Contents


Advances in Contemporary Aged Care: Retirement to End of Life
Contents


Advances in Contemporary General Practice Nursing: Role of the Practice Nurse
Contents


Advances in Contemporary Nurse Recruitment and Retention
Summary | Contents


Advances in Contemporary Community and Family Health Care
Contents


Advances in Contemporary Indigenous Health Care
Contents


Advances in Contemporary Nursing & Interpersonal Violence
Contents


Advances in Contemporary Mental Health Nursing
Contents


Advances in Contemporary Child and Family Care
Contents


Advances in Contemporary Transcultural Nursing
Contents


Sponsored Links

Selected Articles

The Teaching and Learning Principles of Metropolitan Aborigines with Diabetes


Culture-specific care for Indigenous people


Overseas experience of the neonatal nurse practitioner role


Palliative Care and Vulnerability of Self


A study of clinical nursing research priorities in aged care


Looking to the Future


Website Design by Arrowsmith Websites Maleny Sunshine Coast