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The NurseLink Model of Care

Joy Nugent
Founder, NurseLink

Article Text

About the founder

Joy Nugent has been a pioneer in private nurse practice since 1987. She was a foundation executive member of NIPPSA (Nurses in Private Practice South Australia). The focus of her practice is gerontology and palliative care in the home setting. Team nurses, counsellors and home care assistants assist Joy in providing fee for service nursing and supportive care. The company has ISO 9000 accreditation and is supported by a custom written computer programme and provides holistic education – the basis of the model. Joy has a commitment to self-directed education and travels internationally in her quest for insights and learning.

About the model

The NurseLink motto is The Patient First – always and experience in the delivery of care confirms that individuals and families in the private sector seek patient –centred care in their own environment, surrounded by the people and the things they know and love. Rewards for those providing the service go beyond the financial and include experience and insights into another person's way of life and the opportunity for developing compassion and personal growth. Self awareness as to how attitude, knowledge and skills affect caring excellence is a fundamental NurseLink teaching. Joy is responsible for the initial assessment and case coordination. The model provides personal and flexible 24 hour care that includes an on-call Helpline. This means that the patient and family are empowered to self care and Joy's team members are there to fill in any gaps in the self-care with education and practical help.

About the practice

The model recognises the multi layers of a person's needs and strives to support not only a person's physical and intellectual needs but also emotional and spiritual needs. It acknowledges that all these areas are interrelated and need equal attention. This requires time: for some patients, a few hours a week; for others 24-hour a day care. The NurseLink Portfolio is the assessment tool. It contains health information, invites the patient and family to explore their own needs and with the case coordinator form mutual goals. The role of the case coordinator is to put into place care that supports individual preferences with consideration to costs involved in providing that care. The patient and family are encouraged to live their lives in ways that are meaningful for them. Choice is always an option and trusting relationships underpin choice.

About the team

The Patient Portfolio is kept in the home to provide effective team communication for all those involved. The case coordinator maximises known resources and the role includes advocacy as well as education. If further resources are needed in one of the identified areas these are facilitated through the case coordinator who is trained in palliative care, bereavement counselling, basic wound management and many of the complementary therapies. The case coordinator provides direct and indirect supervision and credentialling. Documentation encourages the team member to consider the whole person when writing a report for the period of care. A Weekly Work Schedule advises who is coming and the time and contract of care. This document is signed and becomes an input document for the NurseLink computer system for the generation of accounts to the patient and pays to staff. The model provides scope and satisfaction for the nurse case coordinator.

Sandakan Hospice – NurseLink training in practice

International Training

For the past seven years a group of committed nurses, doctors and allied health professionals have travelled to Sandakan, Sabah, East Malaysia from Australia to give educational and moral support to the volunteer doctors, nurses and carers from Sandakan Hospice who have achieved leadership in the hospice movement in Malaysia. Malaysia is a Muslim country that is tolerant of all religions and the participants in this year's International Training Program demonstrated the connectedness of all people in the common goal of supporting dying patients.

The Group is led by a dynamic nurse, Margaret Lieu. There is a shortage of trained hospice nurses in Malyasia. Margaret runs an 18 hour training programme for lay volunteers twice a year. Sixty people attended her last training – this is spreading the word and gaining support in the community. The community from the beautiful Buddhist temple in Sandakan supports Margaret with a regular donation. Margaret has just been awarded a community honour for her work.

The spirit of a person is honoured in many ways in Malaysia. However, this year a great lesson was given to me as I talked to the mother of a 17 years old boy who was severely brain damaged. When I arrived as a guest for high tea I was introduced to the boy who was lying on a bed in a prominent position in the home and being moved and attended to by several caring maids. The mother said; 'This is our eldest child. We don't hide him – my husband says that he was given to us because we are good people and will take care of him.'

I felt this was a far cry from my Western culture who, I felt, would have blamed and asked 'Why me? Why am I being punished?' rather than to have thanked God.

Location

NurseLink is located at 2/196 Hutt St Adelaide, SA 5000. Phone (08) 8232 0511, Email nurselink@tpg.com.au, Facsimile (08) 8232 3923.

Figure 1: The core model and a guide to holistic care

Spiritual
Searching:
for meaning in life/self
for personal values/beliefs
for trusting relationships Practising:
meditation/contemplation/prayer
living in present moment with love
listening to/trusting intuition
appreciation of nature/natural order



Emotional
Experiencing:
unconditional love
forgiveness of self/others
choice
Feeling:
a sense of freedom/control
the comfort of belonging
a sense of usefulness/satisfaction/role
the essence of realistic hope

Physical
Obtaining:
relief from troublesome symptoms
appropriate nutrition
bowel/bladder care
Experiencing:
comfort/safety
therapeutic touch/massage
frequent hygiene
periods of rest/activity



Intellectual
Obtaining:
health information
involvement in decision making
effective communication
Understanding:
benefits of positive approaches
changes need not promote stress
legal aspects of living
funeral planning

Practical considerations: These are all interrelated

Physical

Intellectual

Emotional

Spiritual

Is the patient in the environment of choice?

Is the patient able to communicate needs?

Is the patient able to feel useful and needed?

Has the patient lost faith in his/her belief?

Is the patient in the physical position of most comfort or choice?

Is the patient involved in planning and decision-making?

Is the patient being validated as a valued individual?

Does the patient feel that they have a life task yet to complete?

Is the bed clean, fresh and dry and is the patient comfortably and suitably clothed?

Does the patient have enough (or too much) information? Have informed consent issues been addressed?

Does the patient feel loved and cared for without conditions – eg. When they are angry, frustrated, playful?

Does the patient feel secure in their world view? Is there a request for a spiritual director?

Does the patient have enough time for rest or activity? Is a day/night reversal preferred?

Is the care plan one of mutual goals and are the nursing procedures understood?

Does the patient feel empowered to make choices? Eg. Refusal or choice of treatment

Are there dreams or nightmares to be explored? Would medication help to relieve anxiety?

Does the patient have appropriate food and fluids. Is it the food of choice?

Does the patient have enough undisturbed time for reflection and thinking through issues?

Does the patient feel that they have 'unfinished business' or issues to resolve?

Does the patient have a love of life and a sense that if death is imminent that it is timely?

Are troublesome physical symptoms being well managed?

Offer TV, videos, radio, cassette tapes, CDs, and reading material.

Have emotions such as fear, guilt or remorse been addressed?

Is there a sense of peace and acceptance of present situation?

Would pampering treatments such as massage and water therapy be appreciated?

Would mental exercises such as cross words or visualisation be helpful?

Does the patient have a sense of belonging to a family, group or country?

Is there a belief in a continuation of life in some form? Is there space and time for a ritual or practice?

Is oral hygiene and skin care being adequately addressed?

If appropriate have financial, legal and ethical issues been addressed?

Have the patient's accomplishments in life been honoured?

Is there meaning in the their life events? What lifts the spirit and fosters feelings of love?

Figure 2: The NurseLink model

Figure 2: The NurseLink model



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