Quality of life issues identified by palliative care clients using two tools
Sue Lewis
Clinical Nurse Consultant, Palliative Care, Royal District Nursing Service South Australia Inc, SA
Marie Bridge
Clinical Nurse Consultant, Palliative Care, Royal District Nursing Service South Australia Inc, SA
Di Roughton
Clinical Nurse Consultant, Palliative Care, Royal District Nursing Service South Australia Inc, SA
Janine Barelds
Clinical Nurse, Palliative Care, Royal District Nursing Service South Australia Inc, SA
Sava Brenton
Clinical Nurse, Palliative Care, Royal District Nursing Service South Australia Inc, SA
Sherree Cotter
Clinical Nurse, Palliative Care, Royal District Nursing Service South Australia Inc, SA
Mary-Lou Hagebols
Clinical Nurse, Palliative Care, Royal District Nursing Service South Australia Inc, SA
Kirsty Woolman
Clinical Nurse, Palliative Care, Royal District Nursing Service South Australia Inc, SA
Merilyn Annells
Professor of Community Nursing, La Trobe University, VIC; Research Consultant to Royal District Nursing Service South Australia Inc.
Tina Koch
Adjunct Professor of Nursing, School of Nursing and Midwifery, Flinders University; Director, Research Unit, Royal District Nursing Service, SA
PP: 031 - 041
Abstract
Reported are issues impacting upon the Quality of Life (QoL) of 59 palliative care clients within a district nursing service. These issues reinforce the emerging conceptualisation of QoL as being subjective and multidimensional.
The issues were identified during a trial of two QoL assessment and measurement tools, the Client Generated Index (CGI) and the McGill Quality of Life (MQOL). In this era of considerable concern about QoL for the terminally ill, the article's intent is to present the QoL issues identified, the grades of impact and priority for improvement of the issues according to the clients, and to discuss these aspects.
This information can inform the assessment of palliative care clients (the CGI tool was found ideal for such an assessment), and may also inform further research on the QoL of palliative care clients.
Keywords
quality of life; palliative care; quality of life assessment; quality of life measurement
References
Annells M, Brown M, Koch T (2001) Client relevant care & quality of life: The trial of a Client Generated Index (CGI) tool for community nursing. International Journal of Nursing Studies 38: 9-16.
Bruley D (1999) Beyond Reliability and validity: Analysis of selected quality of life instruments for use in palliative care. Journal of Palliative Medicine 2: 299-309.
Campbell S, Whyte F (1999)The quality of life of cancer patients participating in phase I clinical trials using SEIQoL-DW. Journal of Advanced Nursing 30(2): 335-343.
Cohen S, Mount B (1992) Quality of life in terminal illness: Defining and measuring subjective well-being in the dying. Journal of Palliative Care 8(3): 40-45.
Cohen S, Mount B, Strobel M, Bui F (1995) The McGill Quality of Life Questionnaire: A measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability. Palliative Medicine 9: 207-219.
Cohen SR, Mount B, Tomas J, Mount L (1996a) Existential well-being is an important determinant of quality of life. Cancer 77(3): 576-586.
Cohen SR, Hassan S, Lapointe B, Mount B (1996b) Quality of life in HIV disease as measured by the McGill Quality of Life Questionnaire. AIDS 10(12): 1421-1427.
Cohen SR, Mount B, Bruera, E, Provost M, Rowe J, Tong K (1997)Validity of the McGill Quality of Life questionnaire in the palliative care setting: a multi-source Canadian study demonstrating the importance of the existential domain. Palliative Medicine 11: 3-20.
Eischens M, Elliott B, Elliott T (1998) Two hospice quality of life surveys: A comparison. American Journal of Hospice & Palliative Care May/June: 143-148.
Griffiths R, Jayasuriya R, Maitland H (2000) Development of a client-generated health outcome measure for community nursing. Australian and New Zealand Journal of Public Health 24(5): 529-534.
Jayasuriya R, Ruta D, Maitland H, Grosvenor J, Griffiths R, Kirby S, Zajec K (1997) Patient perspective of well-being: Results of a study of Outcome measurement in community nursing. Paper prepared for Managing and Measuring Health Outcomes: from policy to practice, Conference Proceedings CD-ROM, University of Wollongong, Australia.
O'Boyle C, Browne J, Hickey A, O'Malley K, Joyce C (1995) Schedule for the Evaluation of Individual Quality of Life (SEIQoL):A Direct Weighting Procedure for Quality of Life Domains (SEIQoL-DW).Administration Manual. Department of Psychology, Royal College of Surgeons, Dublin.
Ruta D, Garratt A, Leng M, Russell I, MacDonald L (1994) A new approach to the measurement of quality of life: the Client Generated Index. Medical Care 32: 1109-26
Salisbury C, Bosanquet N, Wilkinson E, Franks P, Kite S, Lorentzon M, Naysmith A (1999) The impact of different models of specialist palliative care on patient's quality of life: A systematic literature review. Palliative Medicine 13: 3-17.
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