Reducing suffering to improve quality of life through health promotion

Beverley Pegg
Senior Lecturer, School of Nursing, Family and Community Health College of Social and Health Sciences, University of Western Sydney, Parramatta Campus, NSW

Lydia Tan
Senior Lecturer, School of Nursing, Family and Community Health, College of Social and Health Sciences, University of Western Sydney, NSW

PP: 022 - 030

Abstract

This paper deals with complex concepts of suffering, quality of life and palliative care in the context of health promotion. Although these concepts have been examined separately, relatively few researchers have attempted to describe and link these concepts with the aim of health promotion.

The reason why few attempts have been made is because the concepts are paradoxical and include contrasting ideas. Additionally, a number of core aspects of palliative care are underdeveloped and there is failure to address issues of suffering.

Preliminary findings from a phenomenological study of community nurses providing palliative care to suffering clients revealed themes of power and showing the way coming to suffer through not knowing, being as giving by enhancing quality of life and being as giving by sharing. Embedded in these themes are concepts of quality of life, core concerns for managing suffering in terminal illness and ideas for health promotion. These concerns are incorporated in the recommendations for nursing practice and future research.

| More

Keywords

palliative care; health promotion; suffering; quality of life


View references

References

Cassell E J (1982) The nature of suffering: the goals of medicine. New England Journal of Medicine, 306(1): 643-645.

Cassell E J (1991a) The nature of suffering. New York, Oxford University Press.

Cassell E J (1991b) Recognising suffering. Hastings Centre Report, May-June: 24-31.

Chapman, C.R & Gavrin, J. (1993) Suffering and its relationship to pain. Journal of palliative Care 9(2): 5-13.

Copp L A (1974) The spectrum of suffering. Journal of Professional Nursing 6(5): 247-249.

Corner J & Dunlop R (1997) New approaches to care. In Clark D, Hockley J and Ahmedzai S (Eds.) New themes in palliative care. Buckingham, Open University Press.

Diener E & Suh E M (1997) Measuring quality of life: Economic, social and subjective indicators. Social Indicators Research 40: 189-216.

Diener E, Suh E M, Lucas R E & Smith H L (1999) Subjective well-being: three decades of progress. Psychological Bulletin 125(2): 276-302.

Frankl V E (1984) Man's search for meaning. New York, Pocket Books.

Ferrans C E & Powers M J (1992) Psychometric assessment of the quality of life index. Research in Nursing & Health 15: 29-38.

Gregory D & Longman A (1992) Mothers' suffering: Sons who died of AIDS. Qualitative Health Research 2(3): 334-357.

Hopwood P & Thatcher N (1991) Current status of quality of life measurement in lung cancer patients. Oncology 5: 159-173.

Kellehear A. (1999a) Health promoting palliative care. Melbourne, Oxford University Press.

Kellehear A. (1999b) Health promoting palliative care: Developing a social model of practice. Health Promotion Journal of Australia 9(1): 30-34

Kelly D., Ross S., Gray B. & Smith P. (2000) Death, dying and emotional labour: problematic dimensions of the bone marrow transplant nursing role ? Journal of Advanced Nursing 32(4): 952-960.

Kleinman A. (1988) The illness narratives: Suffering, healing and the human condition. New York, Basic Books.

Leners D & Beardslee N Q (1997) Suffering and ethical caring: incompatible entities. Nursing Ethics 4(5): 361-369.

Morse J M & Carter B (1996) The essence of enduring and expressions of suffering: The reformulation of self. Scholarly Inquiry for Nursing Practice: An International Journal 10(1): 43-60.

Redpath R (1998) Negotiating new goals and care options in the presence of irreversible disease. In Parker J M & Aranda S (Eds.) Palliative care: Explorations and challenges. Sydney, Maclennan & Petty.

Rushton C H (1992) Care-giver suffering in critical care nursing. Heart & Lung 21(3): 303-306.

Sandelowski M (1993) The problem of rigor in qualitative research. Advances in Nursing Science 8(3): 27-37.

Sherwood G (1992) The response of the caregivers to the experience of suffering. In Stark P L & McGovern J P (Eds) The hidden dimension of illness: Human suffering. New York, National League for Nursing.

Steeves R H, Kahn D L & Benoliel J Q (1990) Nurses' interpretation of the suffering of their patients. Western Journal of Nursing Research 12(6): 715-729.

Stratton Hill, C. (1992) Suffering as contrasted to pain, loss, grief, despair and loneliness. In Stark P L & McGovern J P (Eds.) The hidden dimension of illness: Human suffering. New York, National League of Nursing.

Travelbee J (1971) Concept: Suffering. Interpersonal aspects of nursing. Philadelphia, F.A. Davis.

Van Manen M (1990) Beyond assumptions: Shifting the limits of action research. Theory into Practice 29(3): 152-157.

Wass A. (2000) Promoting health: The primary health care approach. Sydney, Harcourt.

World Health Organisation (WHO) (1986) Ottawa charter for health promotion. First International conference on Health promotion http://www.who.int/hpr/docs/ottawa.html

World Health Organisation (WHO) (1990) Cancer pain relief and palliative care. Technical report series 804. Geneva, Switzerland, Author.



RSS Facebook Twitter

Sign Me Up

*Email Address
First Name
Surname

Web Feed

Latest Articles

Special Issues

Advances in Contemporary Health Care for Vulnerable Populations
Volume 42/1
Summary


Advances in Contemporary Community & Family Health Care (3rd edn)
Volume 41/1
Summary | Contents


Advances in Contemporary Complex Health Care: Nursing Interventions
Volume 40/2
Summary | Contents


Advances in Contemporary Community and Family Health Care (2nd edn)
Volume 40/1
Summary | Contents


Advances in Contemporary Nurse Education (2nd edn)
Volume 38/1-2
Summary | Contents


Advances in Contemporary Indigenous Health Care (2nd edn)
Volume 37/1
Summary | Contents


Advances in Contemporary Nursing: Workforce and Workplaces
Volume 36/1-2
Summary | Contents


Advances in Contemporary Modeling of Clinical Nursing Care
Volume 35/2
Summary | Contents


Advances in Contemporary Mental Health Nursing (2nd edn)
Volume 34/2
Summary | Contents


Advances in Contemporary Nursing and Gender
Volume 33/2
Summary | Contents


Advances in Contemporary Nurse Education
Volume 32/1-2
Summary | Contents


Advances in Contemporary Nursing: History of Nursing and Midwifery in Australasia
Volume 30/2
Summary | Contents


crossref.org - The citation linking backbone



Website by Arrowsmith Websites. Website Design Sunshine Coast, Australia.