Parenting a child with medically diagnosed severe food allergies in New Zealand - Contemporary Nurse: Healthcare Across the Lifespan

Parenting a child with medically diagnosed severe food allergies in New Zealand: The experience of being unsupported in keeping their children healthy and safe

References

Arvola T, Tahvanainen A and Isolauri E (2000) Concerns and expectations of parents with atopic infants. Pediatric Allergy Immunology 11, 182-188.

Avery NJ, King RM, Knight S and Hourihane J (2003) Assessment of quality of life in children with peanut allergy. Pediatric Allergy and Immunology 14, 378-382.

Bannon G, Astwood J, Goodman R, Hefle S and Taylor S (2004) Allergy assessment for food biotechnology. In MK Bhalgat, WP Ridley, AS Felsot and JN Seiber (Eds) Agricultural biotechnology (pp.151-163). Washington: Oxford University Press.

Bollinger ME, Dahlquist LM, Mudd K, Sonntag C, Dillinger L and McKenna K (2006) The impact of food allergy on the daily activities of children and their families. Annals of Allergy Asthma and Immunology 96(3), 415-421.

Boros CA, Kay D and Gold MS (2000) Parent reported allergy and anaphylaxis in 4123 South Australian children. Journal of Paediatrics and Child Health 36, 36-40.

Charles A, Sabouraud D, Lavaud F, Lebargy F and Motte J (2004) Early food allergy in infants from 6 to 18 month old: A study of 69 cases. Revue francaise d'allergologie et d'Immunologie clinique 44, 382-388.

Clark S, Long AA, Gaeta TJ and Camargo, CA (2005) Multicenter study of emergency department visits for insect sting allergies. Journal of Allergy and Clinical Immunology 116(3), 643-649.

Confino-Cohen R, Melamed S and Goldberg A (1999) Debilitating beliefs, emotional distress and quality of life in patients given immunotherapy for insect sting allergy. Clinical and Experimental Allergy 29, 1626-1631.

Dahl R, Andersen PS, Chivato T, Valovirta E and De Monchy J (2004) National prevalence of respiratory allergic disorders. Respiratory Medicine 98(5), 398-403.

Denzin NK and Lincoln YS (2000) Handbook of Qualitative Research (2^nd edn). Thousand Oaks CA: SAGE.

Edwards C and Titchen A (2003) Research into patients' perspectives: Relevance and usefulness of phenomenological sociology. Journal of Advanced Nursing 44(5), 450-460.

Fitzharris P, Empson M, Ameratunga R, Sinclair J, Crump V, Steele R, et al (2006) Anaphylaxis management: The essential role of adrenaline (epinephrine) auto-injectors: Should PHARMAC fund them in New Zealand? The New Zealand Medical Journal 119(1233), 1223.

Gill S (2006) An overview of atopic eczema in children: A significant disease. British Journal of Nursing 15(1), 494-499.

Gold MS (2006) Prevention and management of anaphylaxis in schools. Allergy and Clinical Immunology International Journal of the World Allergy Organisation 8(1), 11-14.

Grundy J, Matthews S, Bateman B, Dean T and Arshad SH (2002) Rising prevalence of allergy to peanut in children; data from 2 sequential cohorts. Journal of Allergy and Clinical Immunology 110(5), 784-789.

Hawkins C (2005) The effects of atopic eczema on children and their families: A review. Paediatric Nursing 17(6), 35-39.

Heine RG (2006) Gastroesophageal reflux disease, colic and constipation in infants with food allergy. Current Opinion in Allergy and Clinical Immunology 6, 220-225.

Hu W, Grbich C and Kemp A (2007) Parental food allergy information needs: A qualitative study. Archive of Disability in Childhood 92, 71-77.

Kapoor S, Roberts G, Bynoe Y, Gaughan M, Habibi P and Lack, G (2004) Influence of multidisciplinary paediatric allergy clinic on parental knowledge and rate of subsequent allergic reactions. Allergy 59(2), 185-191.

Kilanowski J, Stalter AM and Gottesman MM (2006) Preventing peanut panic. Journal of Pediatric Health Care 20(1), 61-66.

Kiro C (2006) More than an apple a day: Children's right to good health. Wellington: The Children's Commission.

Lawson V, Lewis-Jones MS, Finlay AY, Reid P and Owens RG (1998) The family impact of childhood atopic dermatitis: The Dermatitis Family Impact questionnaire. British Journal of Dermatology 138, 107-113.

LeBovidge JS, Stone KD, Twarog FJ, Raiselis SW, Kalish LA, Bailey MA, et al (2006) Development of a preliminary questionnaire to assess parental response to children's food allergies. Annals of Allergy, Asthma, and Immunology 96, 472-477.

Leonard BJ, Brust JD and Nelson RP (1993) Parental distress: Caring for the medically fragile children at home. Journal of Pediatric Nursing 8(1), 22-29.

Mandell D, Curtis R, Gold M and Hardie S (2005) Anaphylaxis: How do you live with it? Health and Social Work 30(4), 325-335.

Marklund B, Ahlstedt S and Nordstrom G (2007) Food hypersensitivity and quality of life. Current Opinion in Allergy and Clinical Immunology 7(3), 279-287.

Marklund B, Wilde-Larsson B, Ahlstedt S and Nordstrom G (2007) Adolescents' experiences of being food-hypersensitive: A qualitative study. BMC Nursing 6(8). doi:10.1186/1472-6955-6-8.

Niggemann B and Heine RG (2006) Who should manage infants and young children with food induced symptoms? Archives of Disability in Childhood 91, 379-382.

Notaras E, Keatinge D, Smith J, Cordwell J, Cotterell D and Nunn E (2002) Parents' perspectives on health-care delivery to their chronically ill children during school. International Journal of Nursing Practice 8(6), 297-304.

Nowak-Wegrzyn A and Sampson, HA (2006) Adverse reactions to foods. Medical Clinics of North America 90, 97-127.

Ogden Burke S, Kauffmann E, Harrison MB and Wiskin N (1999) Assessment of stressors in families with a child who has a chronic condition. MCN, The American Journal of Maternal Child Nursing 24(2), 98-106.

Pope C, Ziebland S and Mays N (2000) Qualitative research in health care: Analysing qualitative data. British Medical Journal 32, 114-116.

Robson C (2004) Real world research: A resource for social scientists and practitioner-researchers (2^nd edn) Malden MA: Blackwell.

Roehr CC, Edenharter G, Reimann S, Ehlers I, Worm M, Zuberbier T, et al (2004) Food allergy and non-allergic food hypersensitivity in children and adolescents. Clinical and Experimental Allergy 34, 1534-1541.

Ryan GW and Bernard HR (2000) Data management and analysis methods, In NK Denzin and YS Lincoln (Eds) Handbook of qualitative research (2^nd edn) (pp.769-802). Thousand Oaks CA: SAGE.

Sicherer SH and Bock SA (2006) An expanding evidence base provides food for thought to avoid indigestion in managing diffi cult dilemmas in food allergy. Journal of Allergy and Clinical Immunology 117(6), 1419-1422.

Sicherer SH, Noone SA and Munoz-Furlong A (2001) The impact of childhood food allergy on quality of life. Annals of Allergy, Asthma and Immunology 87(6), 461-464.

Smith JK and Deemer DK (2000) The problem of criteria in the age of relativism. In NK Denzin and YS Lincoln (Eds) Handbook of qualitative research (2^nd edn) (pp.877-896). Thousand Oaks CA: SAGE.

Thong B and Hourihand J (2004) Monitoring of IgE-medicated food allergy in childhood. Acta Paediatrics 93, 759-764.

Thorne S, Reimer-Kirkham S and MacDonald-Emes J (1997) Interpretive description: A non-categorical qualitative alternative for developing Nursing knowledge. Research in Nursing and Health 20, 169-177.